[Organizational Info][Supported Disorders][Communicate][Links][Sitemap]
[Organizational Info][Supported Disorders][Communicate][Links][Sitemap]
The International Society for Mannosidosis & Related Diseases: Online Resources & Links
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Websites of interest to our visitors
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| Note: A listing here constitutes no real or implied endorsement of that site's content by the International Society for Mannosidosis & Related Diseases | |
As with other sections of our website, we hope that this area will soon have many valuable offsite links that will aid you in understanding the disorders we support. Your comments and suggestions are welcomed; please continue to check back for our latest updates.
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CLIMB: formerly the Research Trust for Metabolic Diseases In Children, a United Kingdom umbrella organization advocating on behalf of children with metabolic diseases, such as the Lysosomal Disorders. |
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Genes and Disease: the National Center for Biotechnology Information has made this online reference available to the public and will aid in an understanding of how genetic diseases occur. |
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Genetics Resource Center: the University of Pittsburgh provides this comprehensive list of links regarding genetics and genetic diseases. |
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Glycoprotein Degradation Disorders Clinical Resources: brief, medically-oriented descriptions of diseases such as alpha mannosidosis, fucosidosis, sialidosis and others. |
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Human Genetic Disease: A Layman's Approach: a thorough, understandable explanation of the biochemical aspects of Lysosomal Diseases. |
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International Storage Disease Collaborative Study Group: an organization dedicated to advancing therapeutic treatments for Inborn Errors of Metabolism. |
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Lysosomal Diseases Australia: a continent-wide effort to unify public awareness efforts for all the Lysosomal Diseases. |
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The Society for Mucopolysaccharide Diseases (UK) |
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Vaincre les Maladies Lysosomales (France) |
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American Sign Language Browser: for hearing-impaired children and their parents this interactive website demonstrates how to form many sign language functions in English. |
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Disability and Medical Resource Directory Mall: a virtual storefront to vendors of medical and disability equipment and services. Although concentrated to US and Canadian companies, many website links are included for further investigation. |
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Dr. Koop's Medical Encyclopedia: a general reference for conditions and symptoms. |
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Ear Surgery Information Center: a medical site offering information on ear conditions requiring surgical intervention. |
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Eye Diseases: brief information on various disorders of the eye from the American Optometric Association. |
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Family Village: an extensive source of information and support on family health and disabilities. |
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Hearing Loss: the University of Washington's Virginia Merrill Bloedel Hearing Research Center presents this page explaining the various types of hearing loss. |
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The Hydrocephalus Center: helpful information about a possible side effect of storage diseases. |
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The Merck Manual: a good, general reference for all medical questions. |
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PAGER (Pediatric/Adolescent Gastroesophageal Reflux Association: an organization that promotes awareness for reflux and other gastrointestinal problems in children. |
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Rare Genetic Diseases In Children: An Internet Resource Gateway: comprehensive information and links on a broad range of issues affecting families of children with genetic disorders. |
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RxList, the Internet Drug Index: find information on prescribed medicines, alternative treatments or a medical definition on this informative site. |
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International Society for
Mannosidosis
& Related Diseases, Inc.
URL: http://www.mannosidosis.org/weblinks.htm
webmaster@mannosidosis.org
Last Update:
February 10, 2002
