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This is the ongoing
journal of Robert Stark's fight against alpha
mannosidosis via Bone Marrow Transplant. Families and caregivers of children with
mannosidosis and other Lysosomal Diseases face complex decisions about the
future. It is the hope of Robert's parents, Kathleen and Mark,
that the pages within will prove helpful when such decisions must be
made. |
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| Robert underwent his first transplant in July 2001. In April 2002, after the first transplant failed, the family decided that Robert should undergo a second procedure. Select from the menu below to follow the story, as told by Robert's parents, Kathleen and Mark: | ||
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prologue | diary bmt # 1 | medical notes bmt # 1 | diary bmt # 2 | graphs & charts bmt # 2 |
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| acknowledgement
& disclaimer ismrd home : sitemap |
 You Can Help! |
photo gallery |
bmt info jenny's journal email kathleen |
