the international society for mannosidosis & related diseases presents:
Robert's Road to Recovery

 

Prologue

Robert Stark Robert, our youngest son, was diagnosed with Alpha Mannosidosis in February 2001 at the age of four.  This was a long time in coming.  I want to cover some history that may be useful to other parents.  Robert is now recovering from a bone marrow transplant that was performed July 19, 2001, and that background may be valuable, as well.  Please see my personal diary of transplants 1 and 2 to participate in our journey.


To read this prologue, select from the menu below:

email kathleen back to the beginning suspicions & diagnosis an action plan & donor search robert's surgeries

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