the international society for
mannosidosis & related diseases presents:
Robert's Road to Recovery
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Robert, our youngest son, was diagnosed with
Alpha Mannosidosis in February 2001 at the age of four. This was a long time in coming.
I want to cover some history that may be useful to other parents. Robert is now recovering from a bone marrow
transplant that was performed July 19, 2001, and
that background may be valuable, as well. Please see my personal
diary of transplants 1 and
2 to participate in our journey. To read this prologue, select from the menu below: |
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| email kathleen | back to the beginning | suspicions & diagnosis | an action plan & donor search | robert's surgeries |
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