the international society for mannosidosis & related diseases presents:
Robert's Road to Recovery: the first transplant

Kathleen's Personal Diary

Robert's mother, Kathleen, is maintaining diaries of her son's BMT for Alpha Mannosidosis.  This section covers the details behind Robert's first transplant, which lost engraftment in the late winter of 2002.  Shortly thereafter his family made the decision to proceed with a second transplant.
Kathleen's Personal Diary: BMT # 1
2001:
july
910-12 | 14 | 15 | 16-17 | 18 | 19 ! | 23 | 27
august6 | 7 | 9 | 10 | 13 | 16 | 17 | 19 | 20 | 21 | 23 | 24 | 25 | 26 | 27 | 30 | 31
september: 1 | 2 | 3 | 4 | 6 | 7 | 13 | 15 | 21 | 27 | 29
october: 13 | 20 | 22 
november: 7 | 10 | 16 | 19 | 22
december:17 | 18

2002:
march:
10 |14 | 18 >>a second bmt!

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HI! If you want to know more about Mannosidosis, click me!

Alpha Mannosidosis
!

Robert and Matt

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Last updated:
Saturday, September 04, 2004