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| Kathleen's Diary: September 11, 2002 |
the international society for
mannosidosis & related diseases presents:
Robert's Road to Recovery: the second
transplant
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| Kathleen's Diary: September 11, 2002 |
BMT + 164
Dear Friends and Family,
I know I am very remiss in my updates but Robert is again on his way to UCSF. He
has been loosing weight and he needs to get in more calories in order to see if
he puts on weight. If he doesn't put on weight we have to worry about graft vs.
host.
He was at UCSF last weekend and had a NG tube put in in order to feed him 1000
calories a day. His potassium levels have been high and he is running a very low
grade fever so that is why we are on our way back.
I will ask Mark to write another update soon. Thanks for continueing to prayer
for Robert.
Kathleen
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