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| Kathleen's Diary: June 24, 2002 |
the international society for
mannosidosis & related diseases presents:
Robert's Road to Recovery: the second
transplant
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| Kathleen's Diary: June 24, 2002 |
BMT + 83
Robert had forgotten how to "share" while he was in the hospital and
relearning it is coming very slow. He does remember how to tattle and does it
very effectively although most of his tattling is in baby talk and the only part
easy to understand in the sentence is the name of the sibling he is complaining
about.
Mark and I are also trying to get used to home life. I am having a hard time
understanding how much money it takes to run our little family. We did not spend
as much money each month while we were in the hospital. It now seems like a pent
up demand has hit us hard; kid's wanting to buy, buy, buy and cars that are
whining about their need for maintenance.
One thing you can say for the hospital; life is fairly basic. There was only one
goal in the hospital; it was to keep Robert alive and that was our focus for the
last six weeks; one minute at a time, one hour at a time, one day at a time.
I am finishing the update while Mark is trying to fix a cabinet one of the kids
pulled on too hard today.
| Type | Result | Reference |
| White Blood Cells | 5.2 | 4.5-15.5 |
| Red Blood Cells | 2.9 |
3.9-4.9 |
| Platelets | 8.0 | 140-450 |
| Neutrophils | 3.2 | 1.5-8.5 |
| Bilirubin | 2.9 | 0.3-1.3 |
| GGT | 1722 | 7-71 |
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