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| Kathleen's Diary: June 23, 2002 |
the international society for
mannosidosis & related diseases presents:
Robert's Road to Recovery: the second
transplant
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| Kathleen's Diary: June 23, 2002 |
BMT + 82
Matt had a very big birthday party today. It was hard to leave Robert
behind when we left for the park to meet all Matt's friends and many of our
kids' cousins (Guy, Sophie, Grace, Mia, Dan, Bo, Julia and Tom). Matt finally
felt he had his real birthday party with all his friends, a jumping room that
deflated with kids in it, a piņata that did not fall apart until every child had
hit it and a couple of the kids watching were hit, a half a sheet cake that was
totally devoured in ten minutes and enough toys to improve Toy R Us' revenue
outlook for this quarter.
Tonight at church, I was able to tell the congregation how well Robert was doing
and to encourage them not to stop praying.
Mark developed a great medical chart for me to use to keep track of the
medications. It is a checklist I can just work through during the day. If anyone
needs one, let me know.
June 20th Corrected Counts:
| Type | Result | Reference |
| White Blood Cells | 4.5 | 4.5-15.5 |
| Red Blood Cells | 2.8 |
3.9-4.9 |
| Platelets | 7.1 | 140-450 |
| Neutrophils | ? | 1.5-8.5 |
| Bilirubin | 3.6 | 0.3-1.3 |
| GGT | 1926 | 7-71 |
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