the international society for mannosidosis & related diseases presents:
Robert's Road to Recovery: the second transplant

Kathleen's Diary: April 27, 2002

BMT + 25

Robert had fevers most of the day again. He felt a little better during
the day. The bilirubin was down slightly today, and so was the GGT. Robert
got a CT scan today to see if there was any infected areas or perforations
of the bowels. Neither of these was found, but the large intestine was
enlarged. The doctors will look at the CT scan tomorrow morning.

I had trouble finishing the update because Robert has had a very difficult
night. He was in a lot of pain and needed frequent medication. He also
wanted soda, but he is now NPO, so he can't have anything to eat or drink
except a small amount of water on a sponge. He also had fevers and high
blood pressure. They want to switch Robert to a new blood pressure
medication that is a beta-blocker, so it will slow down his heart rate as
well. The challenge is that it is a IV medication, and there are so many
medications going into his IV's now, that we haven't been able to get the
medication started.

Please keep praying for Robert!

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