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| Kathleen's Diary: April 22, 2002 |
the international society for
mannosidosis & related diseases presents:
Robert's Road to Recovery: the second
transplant
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| Kathleen's Diary: April 22, 2002 |
BMT + 20
Robert was more uncomfortable today, and his rash seemed worse. He also
had a slight fever in the evening. His liver blood proteins were actually
improved slightly, except for GGT. The doctors were not too concerned with the
blood tests showing some reduction in kidney function, because that may have
been caused by either his medications, or it may be due to some dehydration.
Robert did have a lot of diarrhea today, and that may have lowered his fluids.
There was also a fair amount of blood coming out, as well; so he needed two
platelet transfusions today be ready for the TPA treatment tonight.
The doctors now think Robert probably has both VOD and GVH, and they are
treating both. Most children recover from these diseases, provided they don't
progress to a severe stage. Robert is not at a severe level, so we are hoping to
see reversal of symptoms. Obviously, this is a very frightening time for our
family, and we appreciate everyone's support, prayers, and good wishes
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