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| Kathleen's Diary: April 10, 2002 |
the international society for
mannosidosis & related diseases presents:
Robert's Road to Recovery: the second
transplant
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| Kathleen's Diary: April 10, 2002 |
BMT + 8
Life is good when you still have a mother who can hug you and tell you that
everything will be alright; when your cousin makes sure everyone in her
children's school is going through their toys to see if they can find a Burger
King Will Smith; when the laundry people are still searching for the Burger King
Will Smith; when your sister-in-law sends so many toys from Amazon.com that you
are sure she is clairvoyant; when your previous neighbor in the BMT unit stops
by just to keep us company, and when (drum role) you have the highest bid at
Ebay on a set of Burger King Wild West Series Toys and the seller says he
actually has two Will Smith's he can send you but one doesn't have a horse (we
have about eight horses already).
How about that for good news?
The bad news is that Robert grows more uncomfortable each day. His throat is
bothering him; his gums are so swollen we can't see his teeth anymore, one ear
is full of wax, his hair is falling out and makes him itchy, and we think he is
in enough pain that he had to have five extra shots of pain medicine today.
Robert did get out of bed and play with a new toy when Monaca, the physical
therapist came by. He actually walked around the room with Monaca, Brian, our
previous neighbor, and myself.
And everyone's prayers are appreciated. Sometimes my first and last e-mail of
the day are full of prayers and good wishes. On the whole life is good.
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