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| Kathleen's Diary: April 6, 2002 |
the international society for
mannosidosis & related diseases presents:
Robert's Road to Recovery: the second
transplant
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| Kathleen's Diary: April 6, 2002 |
BMT + 4
Things are getting rougher for Robert. He points to his mouth and tries to
tell Mark it hurts. He drools in his sleep. They have put him on a low dose of
painkillers continuously dripping through his central line. Mark has been with
him since I left Thursday night and he says Robert has been very tired and
quiet. I think the nurses miss the noisy Robert. He has been the talk of the
floor for a while. Even patients in other rooms can hear Robert yelling, "Look,
Dad, look."
The other four children are all ready to go stay with Grandma Jody and
Grandfather Fred. I took Nick and Matt to get snow clothes. Matt liked his
snowsuit, gloves, helmet, boots, and goggles so much he wore them home from the
store and informed us that he was wearing his new outfit on the plane.
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