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ISMRD's Penguin Cafe Discussion Forum is provided as a public service to enable communication among families and others interested in Glycoprotein Storage Diseases. Any information posted or discussions held on The Penguin Cafe, however, do not necessarily represent the views of ISMRD's Board of Directors and should not be construed in any way as an endorsement. ISMRD further cautions visitors to our site from applying comments or advice posted on the Penguin Cafe in lieu of professional care. We strongly advise everyone to consult their own physician for health-related matters about them or someone in their family. Please read the Penguin Cafe FAQ and Disclaimer for further information when entering the forum site.

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