ISMRD's Library is open 24/7 for our visitors to read information online or to download to their own computer for their permanent records.  Please check back often as we add new material and resources to our collection.

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A. ISMRD Organizational Documents

Document Name	Format	Description
US Internal Revenue Service 501 (c)(3) Determination Letter		Certification of ISMRD's charity status in the United States: April 6, 2004.
Bylaws		ISMRD's Organizational Bylaws created in March 1999.

B. Publications

Document Name	Format	Description
Pathways Newsletter Vol. 6, No. 1		Summer 2004 Edition: 1st International Conference on Glycoprotein & Related Storage Diseases.
Crossing Oceans For A Cure Pamphlet		Official Information about ISMRD's 1st Walk-Run Benefit for Glycoprotein Storage Diseases April 23 in Dexter, Michigan.  Register and sign up sponsors, too!

C. Glycoprotein Storage Disease Fact Sheets & Publications

Document Name	Format	Description
Biphosphonate Therapy In Mucolipidosis		Publication relating the potential benefits of Biphosphonates for treating Mucolipidosis.  Written by Prof. David Sillence, MD FRACP
Osteodystrophy of Mucolipidosis Type III		A published paper detailing a study conducted on two New Zealand using Pamidronate as a therapy for Mucolipidosis.  Co-written by Jenny Noble, a member of ISMRD's Board of Directors and Prof. David Sillence, MD FRACP.
Sarah's Journey With ML III		The story of how one young lady has coped with her diagnosis.