Privacy Policy

The International Society for Mannosidosis & Related Diseases (ISMRD) is committed to protecting the privacy of everyone who visits our website, interacts on its public forums or contacts us using embedded emial links or web forms. When you contact us in such a manner, your name and other information are forwarded through the site to the appropriate ISMRD representative to respond. Hard copies of such communication may be kept at the at the home office for ISMRD. ISMRD does not sell, rent, or lend the e-mail addresses of our visitors to 3rd parties.

No works or photos displayed on this website may be reproduced in any way or form without specific written permission from The International Society for Mannosidosis & Related Diseases. All such requests for permission must be made in writing and submitted to info@mannosidosis.org

Browser information collected on the website: As with many website operators, ISMRD analyzes our website logs to constantly improve the value of our website to our visitors. We use an external service to provide reporting to us of browser accesses to our site. This includes page views, unique views, unique visitors, repeat visitors, frequency of visits, and peak-volume traffic periods. In our use of this service, we do not gather, request, record, require, collect, or track any Internet users' personally identifiable information.

Medical Disclaimer

Information found within this website is provided informationally and as a public service to raise awareness for Glycoprotein Storage Diseases. However, ISMRD wishes to emphasize that such information provided here and elsewhere on the Internet never be construed as a substitute for professional medical advice. Always consult your own physician first concerning the health of your child or any loved one. ISMRD makes no representations or warranties with respect to any information offered or provided within or through its website regarding treatment, action, or application of medication. ISMRD will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising therefrom.

We invite you to utilize our website to learn more about these diseases and ISMRD's role in bringing our vision to reality. Please contact us if you wish to know more or want to contribute time or money to our cause.