ISMRD has been fortunate to achieve a few notable milestones through the hard work and dedication of the members of our Board of Directors, past and present; an empathetic and sincere group of scientists and medical professionals and a concerned and proactive group of families from many different countries. Without the three groups working as a team, ISMRD would not be in its present position of being the most world's prominent advocate for Glycoprotein Storage Diseases.

Among our most significant achievements have been the following. To learn more please follow the links to a more detailed account about the highlights of each:

The 1st International Scientific & Family Conference on Glycoprotein Storage Diseases

The word's first International Scientific and Family Conference on Glycoprotein Storage Diseases, held April 1-4, 2004 in Rockville, Maryland USA.  This conference, sponsored by the National Institute for Neurological Diseases & Stroke, brought together the most prominent scientific and medical authorities on these diseases, as well as the first gathering of families affected by them.  From it came a renewed sense of interest among scientists in the mechanisms causing these diseases, and a new found sense of kinship and purpose for attending families.

The People's Genome Celebration

The People's Genome Celebration held in Washington, D.C. on June 9, 2001.  This one day event centered at the Smithsonian Institution's Museum of Natural History was a one-day event celebrating the Human Genome Project.  The day was filled with public forums, panels and displays and was capped by the evening premier of a photographic exhibit celebrating people affected by a genetic disease.  ISMRD proudly witnessed two of its children, David Pierce and Taryn Murphy (both affected by Alpha-Mannosidosis), captured in stunning museum-quality prints and displayed in the Museum of Natural History.