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The International Society for Mannosidosis & Related Diseases: Communication Gateway


 

 

ISMRD's Communication Gateway

 

The inherent isolation resulting from being affected by a rare disease can be somewhat overcome by current technology's ability to link people in widely separated areas.  One of our primary objectives is to enable families and caregivers to provide and exchange information with each other.  ISMRD's Communication Gateway provides a means to fulfill this part of our mission. 

 

 

Communications Gateway
You're not alone! Personal Stories: send us yours!
Jenny's Journal: reclaiming a life through Bone Marrow Transplant
Robert's Road to Recovery: a family's saga of a bmt.
The Penguin Cafe: our  own site's Message Boards - join us! 

Watch here for additional services to be added in the future!

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International Society for Mannosidosis
& Related Diseases, Inc.
URL: http://www.mannosidosis.org/comgate.htm
webmaster@mannosidosis.org
Last Update: May 15, 2004