The International Society for Mannosidosis & Related Diseases presents:

Alexander's Hope: a family's fight against sialidosis Publicity for Alexander

email Alexander's dad, Bill Skojec

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a family's fight against sialidosis
Dr. Skojec, and all of Alex's family, has done much to advocate for his son, Alex, since learning of his diagnosis.  Among these are public awareness efforts utilizing the local and national press.  Among these accomplishments are the following stories, which will provide further information about Alex and his struggle against Sialidosis:

stay tuned for more articles!

 


 

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