The International Society for Mannosidosis & Related Diseases presents:
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| a family's fight against sialidosis | |
Dr. Skojec, and all of Alex's
family, has done much to advocate for his son, Alex, since learning of his
diagnosis. Among these are public awareness efforts utilizing the
local and national press. Among these accomplishments are the
following stories, which will provide further information about Alex and
his struggle against Sialidosis:
stay tuned for more articles! |
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