The International Society for
Mannosidosis & Related Diseases presents:
a family's fight against sialidosis
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Sialidosis is one of the Oligosaccharide family of Lysosomal Storage Diseases. The International Society for Mannosidosis & Related Diseases is proud to present the story of Alexander Skojec and his family's fight, through the intervention of his father, to raise awareness for this very rare disorder.
! Read Dr. Skojec's recount of his family's first encounter with another Sialidosis family.
Last updated:
Saturday, December 15, 2001
